A review by Minnesota researchers, prompted by Sarah's case, actually found no difference in transplant rates or death rates for lung transplant candidates aged 6 to 11 compared to older children and adults.
In any event, as the Murnaghans' story exploded in the media — drawing support from the public and some politicians but disapproval from bioethicists and transplant experts — the family pleaded with the national Lung Review Board and then the U. Department of Health and Human Services to bend the rule for Sarah. No luck. Finally, the family went to federal court. The judge ordered the rule suspended. What happened next was catastrophic. The lungs quickly failed. She was put on a heart-lung bypass machine to try to forestall her death.
We have not told anyone about the failure. This moment in time is indescribable — the level of pain and anguish, the sheer terror. Three days later, Sarah underwent a second double lung transplant — with an adult organ that normally would have been rejected because the donor had pneumonia. As Sarah finished eating her chicken tenders, she talked matter-of-factly about being, as she says at the end of the book, "mostly whole again. She occasionally has nightmares — a common reaction to prolonged intensive care — "but I haven't had them that much in the past year.
As it stands now, more than 90 percent of lungs from donors ages 12 to 17 go to adults instead of children. Sarah's parents brush off such criticsm. Janet Murnaghan said she's heard from many other families of critically ill children who share their concerns.
Meanwhile, the Murnaghan family is expanding again. Janet Murnaghan, 39, is expecting the family's fifth child later this year. Tests show this baby is healthy, she said.
IE 11 is not supported. For an optimal experience visit our site on another browser. As it stands now, more than 90 percent of lungs from adolescent donors, those ages 12 to 17, go to adults. Instead of putting more kids on a list to receive lobes from adult lungs, which have to be cut down to fit children, the entire system should change, Sweet said. If that were to happen, Sweet said he and others would owe Sarah and her family a debt of gratitude.
For her part, Janet Murnaghan plans to watch the process closely and to push for more changes in the organ allocation system. She says she knows she has been a lightning rod both for people who regarded her as a courageous mom and for those who think she was just trying to bend the rules for her own kid. IE 11 is not supported. For an optimal experience visit our site on another browser.
Politics Covid U. Department of Health and Human Services to bend the rule for Sarah. No luck. Finally, the family went to federal court. The judge ordered the rule suspended. What happened next was catastrophic. The lungs quickly failed. She was put on a heart-lung bypass machine to try to forestall her death.
We have not told anyone about the failure. This moment in time is indescribable — the level of pain and anguish, the sheer terror. Three days later, Sarah underwent a second double lung transplant — with an adult organ that normally would have been rejected because the donor had pneumonia. As Sarah finished eating her chicken tenders, she talked matter-of-factly about being, as she says at the end of the book, "mostly whole again. She occasionally has nightmares — a common reaction to prolonged intensive care — "but I haven't had them that much in the past year.
She wears an insulin pump for her diabetes, another side effect of cystic fibrosis. But she has had no problems with organ rejection — another way she has defied the odds.
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